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Why the FT?See why over a million readers pay to read the Financial Times.

Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.

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The National Wallace Monument and the Tolbooth music venue in Stirling were illuminated in orange on Thursday night to mark the announcement.

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